About Me

My photo
I need an out sometimes and so I created this blog.

Monday, January 31, 2011

Chain baby!

Dad just called and told me it is going to be a THREE WAY! There is one donor in AZ, Dad in CA, and Donor in OH. All recipients are down here. My dad will be here 2 weeks from tomorrow. This is such any amazing feeling my dad and I are both curious if we get to meet everyone after the donation process. This is such an amazing feeling and I am so happy that I get to share this experience with my dad. This whole process has brought me and him so close and it will bring us even closer. This is...well it's so hard to explain what we are feeling right now but it is mind blowing. My dad is giving me the BEST gift anyone could ever give...my life back.

Saturday, January 29, 2011


Well the girl passed her glucose which means dad gets to schedule to come out here for the last couple test and if they both pass I will be getting my kidney. Oh I can't wait for the day where I feel 100% no more kidney pain, no more leg pain which I have right now and let me tell you it is not a good feeling. I have this aching pain in my legs I think I am going to go sit in the shower and see if the heat helps. I am just so sick and tired of being in pain all the time hopefully I won't be for much longer. I am also starting to have a little pain in my belly where the hose is but nothing is coming out and my bag is not cloudy so for right now I will just keep an eye on it. It's time now if I don't get this pain to go away Sas is going to have a big cry baby on his hands.

Monday, January 24, 2011


Today was a slow day...Felt really tired. I don't feel like the weekend did me any good I still feel exhausted. I just hope this is all over soon but I know that this can all still crumble. Last clinic they told me my kidney function was getting worse and dialysis was not doing 100% the job so they are kinda hoping this transplant comes fast or try and put me on the cycler. I don't really know what to think or say all I know is I am just so tired and I really want a kidney or break. I think I am going to go lay down again I can barley see straight. Just not sure how much I can keep going and going and going. I need more rest than what I am getting.

Sunday, January 16, 2011


I am watching the Simpsons doing laundry and CRAVING a cheeseburger and mcflurry lol. There are those days where I have to have red meat but not that often. Right now I want to dip my burger in the mcflurry. Sas had to go to Homedept so I asked him to get me those two tasty treats from Mcdonalds. Today was a pretty lazy day I am having some pain in my kidney area so I just laid down and sat in the shower to try and relax it totally helps until I get out then I feel like butt all over again. I just keep telling myself this is almost over I don't have to deal with this too much longer. My belly is all in knots just waiting to hear about the paired donor. Another little issue I am having my heart feels like it is beating out of my chest and going a mile a minute...I forgot to take my meds I know I need to get better with that especially since I will have to take the anti-rejection meds but I always forget to take them on weekends week days I usually always remember. Anyways enough chatting I am going to go fold clothes and take out my last bag for the day.

Saturday, January 15, 2011

Almost there

Well we are almost there...Monday the girl for the paired gets her Glucose testing and if everything goes well Dad can come out here and finish up some minor testing and we can all be scheduled for surgery. I am...wait WE are all hoping this is it. Dads not sleeping I am not sleeping we can both use a peaceful nights rest. My leg pain seems to be getting worse so I plan on Googling to see if there is anything I can do for it still have a major headache but I think it is just STRESS I have so many knots in my back and neck it is not healthy. Feet are starting to cramp up which is caused my dehydration so I am drinking water but not to much and not to fast NOT in the mood for fluid over load. I am really looking forward to Meghan coming out in March that will be really relaxing just hope I have my new kidney by then I know for sure I will still have the damn hose in so that means no lazy river but we can for sure find a lot more to do and hell I won't complain because I will have my kidney. Well I am going to go Google and then off to do my transfer. Night.

Tuesday, January 11, 2011

Been a while

Well it has been a while since I have been on. Mom came in town and we all went to Thai Friday night and Black Swan on Saturday. Black Swan was AMAZING! It  was great to hang out with sissy and mom. I have been kinda down lately Trina was denied and that was really hard to take but the positive is my dad is still in the running for the paired we should hear more next week. Mentally I feel like this is getting more difficult I feel like we go up one and down three. I just feel myself breaking a little every day and it is hard to stay positive when people keep getting shot down. My legs started hurting again and I am so tired it is ridiculous I pass out on the couch every night. Johnna told me I should be the poster child for PD patients lol. She is like look at you, you work, you go to movies, you take your little sister shopping. I go go go till I can't go no more. Today for some reason I can't get over that there is a long ass hose sitting in my stomach and I can feel it and it is uncomfortable but I know I really can't feel it, it is all in my head it is just really bothering me and I can't get the my mind over the matter. Let's change the subject I tried a new chicken recipe... boneless skinless chicken breast with Mrs. Dash and some Lemon Pepper 375 for 35 mins Yum Yum if anyone is interested let me know best part NO SALT and it had a lot of flavor Steven even loved it and that says a lot but of course he salted his it's Steven he can't live without it. Tonight I am making Parmesan chicken. Mind back on the hose lol I really need to stop thinking so much. Well I better get back to dinner... Night all.

Monday, January 3, 2011

Still sick

Had a horrible day at work felt like complete shit. I am still feeling like shit... my jaw is killing me and my neck and head hurt not to mention my nose is stuffed and I am exhausted. I didn't fall asleep til midnight and then I woke up at two walking around not being able to breath. One major positive Sas made me sspaghetti and that was GREAT I thought about it all day. A nice warm bowl of spaghetti felt so good in my belly. Being sick and being on dialysis sucks! For some reason I could swear that it emphasizes the cold. I feel ten times worse when I am actually doing the transfer I just feel so much pain I think it is the achy body. My legs are starting to hurt now lol I am a cold wreck. Well like last night I am going to go start whining to Sas (been doing it since we got home) I feel like such SHIT! Good night!

Sunday, January 2, 2011

Gotta a cold

Damnit! I have a cold again. My nose is stuffed, sore throat, chills, cough, achy body. I hate having a cold I don't like not being able to breath. On top of that what if they call and have a kidney I would have to deny it since you can't have any type of infection before transplant or during. Completely understandable but I want my kidney! But I wouldn't want to go through the surgery and take a kidney that could have been used for me or someone else so I am just going to have to try and get better as quick as possible. Last night I finally filled out my power of attorney for my health. Never thought I would have to do that at 27 but I would rather have the right people in control. So they know everything I want and won't have to talk it over with anyone because I have already decided. Man I have become such a responsible adult...lol. Well I am going to go whine to Sas about feeling like shit. Good night all.