Friday, March 15, 2013
Tests
I am sitting here at Valley getting a 4 hour test done on my small intestine and having to drink a crap load of barium... Yuk
Sunday, March 3, 2013
I'm back
Hello all,
It's been awhile since I really wrote on my blog. I was going through some things but I am getting better. I have found a new outlet for a lot of my emotions... Painting! And I love it painting gives me a way out, a place to go, where nothing matters but the art. I have even creating my own little shop
http://www.etsy.com/shop/Emotionalbirst. I should have done this on dialysis but I was always
So tired but I suggest just a little a day to help with a break from the real world. Check out the
Website and I hope it makes you feel the same emotions as me or even better!
It's been awhile since I really wrote on my blog. I was going through some things but I am getting better. I have found a new outlet for a lot of my emotions... Painting! And I love it painting gives me a way out, a place to go, where nothing matters but the art. I have even creating my own little shop
http://www.etsy.com/shop/Emotionalbirst. I should have done this on dialysis but I was always
So tired but I suggest just a little a day to help with a break from the real world. Check out the
Website and I hope it makes you feel the same emotions as me or even better!
Friday, February 15, 2013
Tuesday, November 27, 2012
Surgeon who carried out the first successfull kidney transplant
Nobel winner and organ transplant pioneer Joseph Murray dies at 93
© Str New / Reuters
Murray and his team completed the first human organ transplant in 1954, taking a kidney from one identical twin and giving it to his twin brother, opening a new field in medicine, the hospital said.
"The world is a better place because of all Dr. Murray has given. His legacy will forever endure in our hearts and in every patient who has received the gift of life through transplantation," hospital president Dr. Elizabeth Nabel said in a statement.
Later in his career, Murray continued to search for ways of suppressing a patient's immune response to prevent it from rejecting foreign tissue, eventually becoming a co-winner of the Nobel Prize for Physiology or Medicine in 1990.
"Difficulties are opportunities. This is a quote that sits atop my father's desk at home. It reflects the unwavering optimism of a great man who was generous, curious, and always humble," his son Rick said in a statement.
Murray began a career in medicine on graduating from Harvard Medical School in the 1940s, and developed an interest in transplanting tissue while working with service personnel injured in World War Two, according to the Britannica Online Encyclopedia.
He completed his surgical training at the Brigham and Women's Hospital and later returned to join the staff and serve as chief of plastic surgery.
With broad interests beyond medicine, Murray said in a brief autobiography for the Nobel Prize organization that he and his extended family had been "blessed in our lives beyond my wildest dreams."
"My only wish would be to have 10 more lives to live on this planet. If that were possible, I'd spend one lifetime each in embryology, genetics, physics, astronomy and geology," he said.
"The other lifetimes would be as a pianist, backwoodsman, tennis player, or writer for the National Geographic."
More than 600,000 people worldwide have received transplants since Murray's innovation, the hospital said.
(Additional reporting by Tim Gaynor; Editing by Lisa Shumaker)
(c) Copyright Thomson Reuters 2012. Check for restrictions at: http://about.reuters.com/fulllegal.asp
Nobel Prize winner Joseph Murray, 71, smiles after learning that he had received the honor for medicine along with another American, in this file picture taken on Oct. 8, 1990.
By Mary Slosson
(Reuters) - Dr. Joseph Murray, the surgeon who carried out the first successful kidney transplant and later won a Nobel Prize for his work in medicine and physiology, died on Monday in Boston at the age of 93.
Murray died after suffering a stroke last Thursday, Brigham and Women's Hospital spokesman Tom Langford said.Murray and his team completed the first human organ transplant in 1954, taking a kidney from one identical twin and giving it to his twin brother, opening a new field in medicine, the hospital said.
"The world is a better place because of all Dr. Murray has given. His legacy will forever endure in our hearts and in every patient who has received the gift of life through transplantation," hospital president Dr. Elizabeth Nabel said in a statement.
Later in his career, Murray continued to search for ways of suppressing a patient's immune response to prevent it from rejecting foreign tissue, eventually becoming a co-winner of the Nobel Prize for Physiology or Medicine in 1990.
"Difficulties are opportunities. This is a quote that sits atop my father's desk at home. It reflects the unwavering optimism of a great man who was generous, curious, and always humble," his son Rick said in a statement.
Murray began a career in medicine on graduating from Harvard Medical School in the 1940s, and developed an interest in transplanting tissue while working with service personnel injured in World War Two, according to the Britannica Online Encyclopedia.
He completed his surgical training at the Brigham and Women's Hospital and later returned to join the staff and serve as chief of plastic surgery.
With broad interests beyond medicine, Murray said in a brief autobiography for the Nobel Prize organization that he and his extended family had been "blessed in our lives beyond my wildest dreams."
"My only wish would be to have 10 more lives to live on this planet. If that were possible, I'd spend one lifetime each in embryology, genetics, physics, astronomy and geology," he said.
"The other lifetimes would be as a pianist, backwoodsman, tennis player, or writer for the National Geographic."
More than 600,000 people worldwide have received transplants since Murray's innovation, the hospital said.
(Additional reporting by Tim Gaynor; Editing by Lisa Shumaker)
(c) Copyright Thomson Reuters 2012. Check for restrictions at: http://about.reuters.com/fulllegal.asp
Wednesday, August 29, 2012
Tuesday, April 24, 2012
Goodbye Alison
I lost a very wonderful friend that I met through my blog. Alison was waitng for a kidney pancreas transplant. I am sorry I am just at a loss right now this is the first person I have known with reanal failure and to have lost and I don't understand it. I just know I want everyone to take a minute and just think about Alison. I know she is in a better place and I know she isn't feeling anymore pain. I am one of MANY people who will miss her and I will never forget our friendship she kept me fighting right along with her.
HANN, Alison Jane - (1957-2012) - Alison passed away peacefully at the North Bay Regional Health Centre on Saturday April 7, 2012 at the age of 54 years. Beloved wife of Frank Hann. Loving mother of Sara, Suzanne, Laura and Kennedy. Also survived by her mother Yvonne Langille. Predeceased by her father Bill Langille. Alison leaves a legacy of love, courage, hope and faith, she will be sadly missed. A celebration of her life will be held on Friday April 13th at Christ Anglican Church at 11 am. Donations to the Kidney Foundation in memory of Alison will be gratefully acknowledged by her family. Funeral arrangements entrusted to HILLSIDE FUNERAL SERVICES, 362 Airport Rd. Online condolences can be made at www.hillsidefuneral.ca 11219772
Saturday, April 14, 2012
April 13th-1 year anniversary
Well yesterday was my 1 year post transplant. Wow, I can't believe it's been a year...I have a lot of mixed emotions with this whole year, with the whole 3 years. We all went to A Different Point of View for dinner (Steven,Char,James,Lindsey,Jeff,Ryan, and me) It was good, Well Lindsey and James had the BEST DINNERS! Lins had snapper and James had Lamb and OMG I am not sure which one was better but it was between there meals. Mine tasted like pure salt lol but I don't salt my food so if you put salt on my food I notice,Char thought it was dry (she had what I had) Oh I didn't even say what I had lol I had the chiefs special risotto with lobster and cauliflower and halibut on top. It was also really rich but my sister being the WONDERFUL person she is switched me plates so I got to eat some of her snapper but she said she understood how I thought there was too much salt, she said it was not bad for her but a person who doesn't salt different story. Sas,Jeff and Ryan all had steak and potatoes...I got to try Sas's steak and HOT DAMN I should have tried it before he salted OMG. I think I know why I feel dehydrated today :). Char got a bottle of wine, not sure what kind but she said it was an Oregon Pino and it was really tasty not too dry and not sweet, I enjoyed it...but it did smell like urine HAHAHA. (I am trying Kim) I was really tired by the end of the night thought I don't stay up late and when I do I am usually laying on the couch talking to Char. I will talk more about what I am feeling another time its just right now I don't know how to describe my thoughts and emotions, but I will.
Oh before I forget the kidney walk was great the family should up and I loved it! My cousin Paige and Andrea were both there which was fantastic and I was really happy they could both make it. Uncle Jim was there too, he was really busy lol my parents took us out to lunch on Saturday and it was yummy. I also got to finally meet Steve and Andre!!!! It was a good time.
Well I better go Andrea is getting married today, it's suppose to rain but I hear that is good luck for rain on your wedding day but the wedding is outside so if it rains after that would be fantastic. But no matter what this will be a wonderful day for Andrea and Carlos.
Oh before I forget the kidney walk was great the family should up and I loved it! My cousin Paige and Andrea were both there which was fantastic and I was really happy they could both make it. Uncle Jim was there too, he was really busy lol my parents took us out to lunch on Saturday and it was yummy. I also got to finally meet Steve and Andre!!!! It was a good time.
Well I better go Andrea is getting married today, it's suppose to rain but I hear that is good luck for rain on your wedding day but the wedding is outside so if it rains after that would be fantastic. But no matter what this will be a wonderful day for Andrea and Carlos.
Friday, January 20, 2012
Steve - Update
Steve called me yesterday! I have been talking to Andre and she has been keeping me posted but it was GREAT to hear from him. He had a infection but the liver is WORKING!!!! It is happy were it is and that is all he can ask for and I totally agree with him. He sounds great and I am so happy he received his liver it is a BIG weight lifted of him and Andre shoulders and now they can pick up before he started getting bad. He feels like he has been punched in the belly but totally understandable. I hope everyone is doing good, I am tired but it's the weekend and I am going to just take it easy. Sleep tight!
Sunday, December 25, 2011
Friday, December 23, 2011
Melanie Bowen - Disease and Healthy Diet Connection
Disease and Healthy Diet Connection
Learning that you have a chronic or terminal illness is devastating in every sense. Cardiovascular disease, cancer and diabetes are amongst the top forms of chronic illness that can have terminal outcomes on life expectancy. From the moment your physician explains the diagnosis, course of the disease, prognosis and treatment options a flurry of confusion can overwhelm your mind. It can seem like a completely unmanageable position, but in all the aspects of chronic or terminal illness that you cannot control, there are factors in your life that you can such as your dietary habits.
Research has come a long way in linking a healthy diet to reducingng the risk of complications in a range of chronic illnesses. Good dietary habits not only prolong life, from chronic illness like heart disease, which is the primary cause of illness related death, but also benefit health in even rare forms of cancer like mesothelioma. In fact, the most notorious culprit leading to chronic diseases or accelerating the course of an existing illness is obesity, which is directly linked to dietary habits.
The benefits of a healthy diet abound and it is because the foods contained in a well-rounded diet actually have protective substances that fight disease. For instance, the cruciferous vegetables, which includes broccoli, kale, onions, cabbage and cauliflower, contain specific compounds called isothiocyanates. The compounds counteract the toxic effects of cancer causing carcinogens that attack the cells in your body.
A 2009 study published in "Cancer Epidemiology Biomarkers and Prevention" found that study participants eating a healthy diet containing cruciferous vegetables had a lowered cancer risk, although ongoing research is warranted to find the exact relationship. But when it comes to improving your health, even the slightest chance that eating your veggies can make a difference is motivation enough to add them to your daily meal plans.
Another preliminary study from 2011, published in "Cancer Causes and Control" tested the effects of daily dietary fiber from grains on reducing the risk of cancers of the head and neck. The study found that a relationship exists, particularly for women. Whole grains are also well known for reducing the risk of heart disease related to high-cholesterol levels. Wheat bread, bran cereal and oatmeal are amongst the many whole grain foods you can add to your daily meals for protecting your health while also providing a nutritious source of energy.
Adopting healthier eating habits takes a little bit of know-how and a lot of action on your part. Keep it simple by choosing fresh vegetables and fruits over frozen, canned or packaged varieties. Fresh offers you the most body protective nutrients without the additives like excess sodium or sugar. Replace white grains with whole grains to boost your fiber intake, which is crucial for colon and digestive health. Opt for lower-fat versions of dairy and choose leaner varieties of meat like skinless poultry or fish instead of fatty red meat and cured meats. Eat at home more than out so you know what you are getting and remember to fuel your body regularly, with several small meals instead of large over-portioned meals.
Research has come a long way in linking a healthy diet to reducingng the risk of complications in a range of chronic illnesses. Good dietary habits not only prolong life, from chronic illness like heart disease, which is the primary cause of illness related death, but also benefit health in even rare forms of cancer like mesothelioma. In fact, the most notorious culprit leading to chronic diseases or accelerating the course of an existing illness is obesity, which is directly linked to dietary habits.
The benefits of a healthy diet abound and it is because the foods contained in a well-rounded diet actually have protective substances that fight disease. For instance, the cruciferous vegetables, which includes broccoli, kale, onions, cabbage and cauliflower, contain specific compounds called isothiocyanates. The compounds counteract the toxic effects of cancer causing carcinogens that attack the cells in your body.
A 2009 study published in "Cancer Epidemiology Biomarkers and Prevention" found that study participants eating a healthy diet containing cruciferous vegetables had a lowered cancer risk, although ongoing research is warranted to find the exact relationship. But when it comes to improving your health, even the slightest chance that eating your veggies can make a difference is motivation enough to add them to your daily meal plans.
Another preliminary study from 2011, published in "Cancer Causes and Control" tested the effects of daily dietary fiber from grains on reducing the risk of cancers of the head and neck. The study found that a relationship exists, particularly for women. Whole grains are also well known for reducing the risk of heart disease related to high-cholesterol levels. Wheat bread, bran cereal and oatmeal are amongst the many whole grain foods you can add to your daily meals for protecting your health while also providing a nutritious source of energy.
Adopting healthier eating habits takes a little bit of know-how and a lot of action on your part. Keep it simple by choosing fresh vegetables and fruits over frozen, canned or packaged varieties. Fresh offers you the most body protective nutrients without the additives like excess sodium or sugar. Replace white grains with whole grains to boost your fiber intake, which is crucial for colon and digestive health. Opt for lower-fat versions of dairy and choose leaner varieties of meat like skinless poultry or fish instead of fatty red meat and cured meats. Eat at home more than out so you know what you are getting and remember to fuel your body regularly, with several small meals instead of large over-portioned meals.
“Melanie Bowen is an awareness advocate for natural health and holistic therapies for cancer patients. You will often find her highlighting the great benefits of different nutritional, emotional, and physical treatments on those with illness in her efforts to increase attentiveness and responsiveness on like topics"
Thank you for contacting me Melanie I enjoyed your article and I am sure others will as well. There are many foods out there for all types of diseases. My mom researched a lot for me before renal failure, during dialysis and now post transplant.
Eat well everyone!
Wednesday, December 14, 2011
AHHHHHHHHHHH!!!!!!!!!
I want to start this blog off a little different... I started this blog to let go of my thoughts and feelings and what I was personally going through on my journey. My blog is my out for the good times and the bad. I hope there are people that can read my blog and get something out of it. If anyone reading this right now doesn't want to hear the ups and downs don't read it, it's ok I am not offended by no means this is just my only way to let it all out because if I don't start blogging again I am going to hold it all in til I blow and it's not healthy and I don't like being this frustrated and angry.
NOW! For the past couple months things have just been being bottled up with work,pain, mentally draining. First, work and the expectations I expect from myself and I just beat myself up so much when something goes wrong. Health insurance issues how I am screwing it up for everyone when I know it is not my fault that I got sick none of this is my DAMN FAULT! I feel bad that people can't afford to spend the money because our rates are high but hell making me feel like a piece of shit and asking me to find new health insurance away from the group just pisses me off. I understand why they are doing it, to help employees but I am also an employee who is being made to feel like an outcast I know they don't mean to hurt my feeling but they are getting hurt.
Second, the pain I am feeling I don't know where it is coming from but it hurts. The pain is in my back and legs it won't go away and again THE DOCTORS WANT TO BLOW ME OFF. Well guess what that doesn't fricking fly with me not anymore not after what has already happened. I will get to the bottom of it with there help or not I will not give up and tell myself it's in my head...ITS NOT! They tried to give my Ibuprofen...Are they fricking kidding me look where that got me. I don't need another hose in my stomach anytime soon...AGAIN! My health is up to me and I will find out what is going on and I won't quit til I have an answer.
Last but not least my mental state. I have not lost my mind or anything but I am really having a hard time with the past 19 months...Dialysis and transplant. It has all been really hard on me, when I look in the mirror I don't see pretty I see this scared up person who just looks beat up and warn out. My scars make me cry looking at them knowing what I went through and just how hard it was. It has just drained me mentally. I can't clean out my dialysis room yet because a part of me has not excepted my kidney is mine and that it is not going anywhere. My room is like a "safe haven" for me. I am just so angry with everything I have gone through and the anger keeps growing daily since I have been holding it in. I am told not to focus on what I can't control but shit what am I suppose to do when everything that is bothering me I can't control so how do I get past it. I am just starting to always feel anxious yet I am so tired and I just need to take a step back. I did tonight when I was talking to my Dad he told me OUR scares are our metals and I need to be proud of mine and where them with pride. It's going to take time but I will one day take pride in my scares I just need more time. I am a 28 year old girl who's stomach is all scared up I just need time. But I will be there one day soon I know it.
I actually feel a little better but I am now 23 minutes past medication time so I need to go but I will be back good or bad.
THE MOST AMAZING NEWS UPDATE:
December 13th (my birthday) Steve got went into surgery at 6am for his liver transplant. A wonderful person that checked organ donor gave Steve the gift of life. Andre said he is doing great other than being doped up and groggy. That was the most amazing thing I could have heard on my birthday now I can say on my birthday I get to share this day with an amazing fighter who got his life back. I was born on December 13th and Steve got his life back. I am very happy to share this day with him.
NOW! For the past couple months things have just been being bottled up with work,pain, mentally draining. First, work and the expectations I expect from myself and I just beat myself up so much when something goes wrong. Health insurance issues how I am screwing it up for everyone when I know it is not my fault that I got sick none of this is my DAMN FAULT! I feel bad that people can't afford to spend the money because our rates are high but hell making me feel like a piece of shit and asking me to find new health insurance away from the group just pisses me off. I understand why they are doing it, to help employees but I am also an employee who is being made to feel like an outcast I know they don't mean to hurt my feeling but they are getting hurt.
Second, the pain I am feeling I don't know where it is coming from but it hurts. The pain is in my back and legs it won't go away and again THE DOCTORS WANT TO BLOW ME OFF. Well guess what that doesn't fricking fly with me not anymore not after what has already happened. I will get to the bottom of it with there help or not I will not give up and tell myself it's in my head...ITS NOT! They tried to give my Ibuprofen...Are they fricking kidding me look where that got me. I don't need another hose in my stomach anytime soon...AGAIN! My health is up to me and I will find out what is going on and I won't quit til I have an answer.
Last but not least my mental state. I have not lost my mind or anything but I am really having a hard time with the past 19 months...Dialysis and transplant. It has all been really hard on me, when I look in the mirror I don't see pretty I see this scared up person who just looks beat up and warn out. My scars make me cry looking at them knowing what I went through and just how hard it was. It has just drained me mentally. I can't clean out my dialysis room yet because a part of me has not excepted my kidney is mine and that it is not going anywhere. My room is like a "safe haven" for me. I am just so angry with everything I have gone through and the anger keeps growing daily since I have been holding it in. I am told not to focus on what I can't control but shit what am I suppose to do when everything that is bothering me I can't control so how do I get past it. I am just starting to always feel anxious yet I am so tired and I just need to take a step back. I did tonight when I was talking to my Dad he told me OUR scares are our metals and I need to be proud of mine and where them with pride. It's going to take time but I will one day take pride in my scares I just need more time. I am a 28 year old girl who's stomach is all scared up I just need time. But I will be there one day soon I know it.
I actually feel a little better but I am now 23 minutes past medication time so I need to go but I will be back good or bad.
THE MOST AMAZING NEWS UPDATE:
December 13th (my birthday) Steve got went into surgery at 6am for his liver transplant. A wonderful person that checked organ donor gave Steve the gift of life. Andre said he is doing great other than being doped up and groggy. That was the most amazing thing I could have heard on my birthday now I can say on my birthday I get to share this day with an amazing fighter who got his life back. I was born on December 13th and Steve got his life back. I am very happy to share this day with him.
Thursday, December 8, 2011
FABULOUS NEWS X'S 2
First and for most Laura aka Lula has found me! She was my other half when we were kids she lived behind me and well I lived behind here :). She was the best friend I ever had. She still has a place very dear to my heart. We have both been looking for each other and well she found me from Transplant Cafe and then my wonderful blog that I adore. It was great to hear from her and how she has been...She is a mama!! I really missed her and I am very thankful she is back in my life.
Second I received a call from the NKF today asking me to be in a testimonial video today and tell a little about my story and how they have helped me. I was SO NERVOUS I don't do good under pressure so I paused a lot so I hope I did good for them and made them proud. I hope I can help raise awareness. Kidney disease is everywhere and it can attack anyone. I can't wait to see the video when it is done I will post it!!!! It will be played at a fundraiser next Friday!!!!
Night all!!!!
Second I received a call from the NKF today asking me to be in a testimonial video today and tell a little about my story and how they have helped me. I was SO NERVOUS I don't do good under pressure so I paused a lot so I hope I did good for them and made them proud. I hope I can help raise awareness. Kidney disease is everywhere and it can attack anyone. I can't wait to see the video when it is done I will post it!!!! It will be played at a fundraiser next Friday!!!!
Thursday, November 17, 2011
Hi All
Hi all,
Just sitting here taking a break from making ornaments for Christmas...KIDNEY WINGS ORNAMENTS!!! They look great so far I will post them when I get pictures up. Tomorrow is the NKF Golf tournament I will be there volunteering with Lins,Char and Char's friend Victoria from Alaska. It will be fun. I was actually checking in to see if Alison has been on but the last time she blogged was 10/14 nothing since. I am thinking about her and a little worried I hope she is doing ok. Steve is doing ok he was moved to 2nd on the list so that is good and bad at the same time. I keep harassing him and checking in just to make sure they are doing ok and see if I can do anything. But they have been through this before. Well I am going to get to watching X-Factor and then read a little bit just started a book "The Blind Mirror" good so far hard to put it down. Well Alison if you are reading this let me know you are ok, I am thinking about you.
Just sitting here taking a break from making ornaments for Christmas...KIDNEY WINGS ORNAMENTS!!! They look great so far I will post them when I get pictures up. Tomorrow is the NKF Golf tournament I will be there volunteering with Lins,Char and Char's friend Victoria from Alaska. It will be fun. I was actually checking in to see if Alison has been on but the last time she blogged was 10/14 nothing since. I am thinking about her and a little worried I hope she is doing ok. Steve is doing ok he was moved to 2nd on the list so that is good and bad at the same time. I keep harassing him and checking in just to make sure they are doing ok and see if I can do anything. But they have been through this before. Well I am going to get to watching X-Factor and then read a little bit just started a book "The Blind Mirror" good so far hard to put it down. Well Alison if you are reading this let me know you are ok, I am thinking about you.
Friday, October 28, 2011
Thoughts for a friend
Shower thoughts
I was sitting in the shower thinking (have had a headache going on a week now so the shower helps) I was remembering when my dad told me I wouldn't remember the pain I had after the transplant because every time I would talk to him I just said PAIN dad so much, he would say it will go away and you won't remember the pain forever. As I sat in the shower I put my hand on my kidney closed my eyes and in a way I felt the pain I remembered the moments after my transplant. As dumb as this is going to sound I like being able to close my eyes feel my kidney and remember the pain because that pain was the most wonderful gift a person could ever receive that moment in my life when my uncle gave me his kidney it was beautiful the pain was there but like my dad said it will go away. He said when your mom's appendix burst she was in so much pain and she had complications, she had pain and a lot of it but pain is not forever which now I understand. I just want to remember it now and then I don't know maybe it is because I am still not "over" it just like how I can't clean out my dialysis room. Feeling the pain and thinking about it is ok to me it makes me more grateful for my gift and for the journey I have taken. I am sure people are reading this and thinking you are crazy but when I remember I think what I am putting in my mouth drinking water and just telling myself you need to take care of "lefty" he is a gift so don't take him for granted. I never will...
Wednesday, October 12, 2011
Jab!Jab!Jab!
Well last week I was play fighting with one of my friends and he jabbed me in the kidney. I fell to the ground and stayed down for about 5 minutes. It didn't register while we were messing around that my kidney was in my abdomen, come on who has there kidney in there abdomen. My kidney has been hurting since and I went in today blood work is stable but Dr. Loral was worried he said that jab could have flipped my kidney and killed it. He said the tiniest injury to the kidney could hurt it. He said I most likely have a bruised kidney and that's why it has been hurting he gave me some medicine and said keep an eye on my urine and let them know if anything changes and tell the my friend to stay away from my kidney. I told him I would go after my friends kidney if he hurt "Lefty" :). He also took me off of the Dapsone and Acycliver!!! Wahoo 2 pills taken off the list now 6 types of pills that come out to 17 pills a day! I have been having nausea and hot flashes so he thought lets get me off these 2 and see if that helps. Fingers crossed. Well I am going to go lay down need to take it easy just til the bruised bean heels.
Tuesday, October 4, 2011
Picked up medical records
Well I picked up my medical records last week and well going through them pissed me off BIG TIME. Just reading that every time they did a urinalysis they found BLOOD+++/PROTEIN+++. Plus you have there comments she is complaining of pain in her kidneys but did anyone ever do a damn thing no they blew me off to the point where EVERYONE was thinking I was making it up hell I even started to think maybe it is all in my head.i had to put the files down lol. I have so much anger and frustration with this whole thing. I am just having such a hard time "copping" and I am not sure why, I mean I was told that many people have a difficult time after transplant but I never understood til now. And I just really wish the pain would go away in my old kidneys but again doctors keep telling me there is nothing wrong it's in your head IGA CAN'T HURT!!!!!!!!! Well guess what... IT DOES!!!!!!!!!!!! Ok sorry I feel much better getting this out rather then keeping it bottled up :) Thank you to who ever is reading my frustration lol. ****DON'T EVER LET ANYONE TELL YOU HOW YOU FEEL OR WHAT YOUR FEELING ESPECIALLY WHEN IT COMES TO YOUR HEALTH!! :)
Friday, September 9, 2011
Doing a lot of thinking
Sitting here tonight doing a lot of thinking. I am tired, a lot of people think you have your transplant and your back to normal right away. Your not your still tired and your stamina is low it takes time to get use to the pills and to get all the energy back. I have been getting migraines a lot and HOT FLASHES while everyone is cold I am sweating plus my kidney hurts and my old ones still hurt. I know I will get my energy back with time I just wish I had it now but I am not going to push it's not healthy. Don't get me wrong this transplant was the best thing that happened to me it's just hard still sitting back not being able to do everything I want to do I know in time I will be able to do a lot of them but some I won't (like eating sushi) :) As dumb as it sounds I still can't wrap my mind around the past 2 years it seems so unreal I don't know how to explain it it's just weird. But GREAT NEWS my Dad had his thyroid removed Tuesday and he is doing FANTASTIC! I am glad everything went well with him though I was really worried about him but now that everything is ok that is all that matters. Well thank you for letting me vent a little and tell you all the good news about my Dad.
Thursday, August 4, 2011
Thursday, July 28, 2011
Doctors Apt
Had a check up yesterday everything went great. But my doctor did say something to me and I can't get it out of my head...You know if it wasn't for your Uncle you wouldn't be here. It's weird apart of me always felt like I don't know how much time I have I was so tired and just drained, at points I just thought today is my last day I can't go on like this. I just never realized how mentally and emotionally this journey would be. At first I was like oh this will be over in no time no big deal and well then it started kicking my ass and with all the denials add more ass kicking. I am just so thankful for every day now it was such an amazing gift (it was really the gift of life) I just hope my blog helps everyone who reads it know that it will happen it just takes time but this disease does prove just how strong we all are.
Subscribe to:
Posts (Atom)